@IDefine

@IDefine has been a member of Linktree for 5 years and joined in September 2021. The social media accounts linked to from @IDefine are: • Facebook • Instagram • YouTube • Email Besides social media accounts, IDefine has populated their site with: • In the News: RARECast Interview with IDefine CSO Eric Scheeff, PhD • In the News: CheckRare Interview with IDefine CSO Eric Scheeff, PhD • Visit Our Website: IDefine.org • Recent Announcements • IDefine Blog • CSO Corner Blog • KS International Care Guidelines • Recommend a Healthcare Provider to the KS Community • Sign Up for Our Newsletter • Join the Kleefstra Syndrome Worldwide Map • Meet Ari: Your new teammate for the hard work of Kleefstra caregiving • Citizen Health: Navigate Care Decisions with Personalized Support • Simons Searchlight: Help Advance Knowledge in Kleefstra Syndrome • ICD-10 Code ID Card for Kleefstra Syndrome • Start Your Own Fundraiser in Support of KS Research • Donate to IDefine • Shop "I Love Someone Rare" Gifts + Apparel • 2026 Family Conference Session Recordings • Share Your Feedback on the 2026 Family Conference! • Buy Tickets: 2026 Karaoke for Kleefstra • Customizable Social Media Graphic - Add Your Own Photo! • KS Awareness Day Social Media Graphics • Support IDefine's Year-End Campaign • Register today: 2024 North American Kleefstra Syndrome Family Conference • Genetic Counseling Sessions in the Caregiver Village • Our Rare Journey: Stories from our Kleefstra Community • Sign up for the Biorepository Collection at the Conference! • Watch Presentations: 2024 North American Kleefstra Syndrome Family Conference • KS Day Photo Submission Form (Due 9/10/24) • Get Tickets: 2026 Southern Roots Reunion (April 11) • Get Tickets: I Love Someone Rare Benefit Concert (May 22) • Join Us: Ella's All-star Lineup Concert (May 12) • IDefine Joins Multi-Foundation Research Collaboration with Johns Hopkins to Advance Novel RNA Therapeutic Platform • Register: 2027 Kleefstra Syndrome Family Conference • Building a Roadmap to Treat a Rare Neurodevelopmental Condition - Global Genes