My daughter Selah turned 13 yesterday and her birthday became a little bit of the old days. We grilled hamburgers and cheesedogs (Selah loves cheesedogs) and had pasta salad and cheesecake. Outside, Elise whipped the softball around with whomever she could find and Selah and Kellen played horse.
Entering this teen era with Selah gives me a lot more fear and trepidation than the other kids, who seemed to be breaking down a door together. Selah's age and the bizarre placement agreement* foisted on us has me more thoughtful about who she is and what's to come.
Selah is gentle and introspective. She's always been able to get herself worked up beyond what she needs to. She's almost always the best athlete on her team and the consummate little and big sister - respectful of her two older sisters and relentlessly bossy of her younger siblings.
Yesterday the big kids and I thought of the universe of words and terms she had created that we all still use: "match/match" to indicate, of course, that two things can be worn together; "fashion" (as in your clothes are so fashion, or Your hair is so fashion); she thought of imaginary friends like Libey (an unfortunate imaginary friend who kept, like Kenny, meeting an untimely death) and Kellen's nickname, Parmus.
Selah bridges the gulf between three adult kids and three tiny kids who haven't met the toothfairy yet and one kid who never will celebrate another earthly birthday. Sometimes I sense that she has a teen's world on her shoulders, and all of the tension of a divorced family. Sometimes, I see her free, laughing uncontrollably. And sometimes, I see her burrowed into the corner of the sofa, at rest. She's a curious, beautiful young woman I have had the pleasure to meet and watch grow.
Showing posts with label Selah. Show all posts
Showing posts with label Selah. Show all posts
Monday, March 12, 2012
Monday, June 22, 2009
Big Day: Pray

Zoe's in right now receiving an EEG. She had another "episode" that resembles a seizure a few weeks ago and the current opinion is it's related to apnea.
The doctor seeing Zoe is the same doctor who met with Selah, all those days ago. Back when Selah's health trials were the worst thing that had ever happened to me as a Dad.
I'm praying for good news there, hoping that God will give us insight into Zoe's health as we learn about her and her condition.
I'm also praying for Josh, Jen's brother, who is trying out for American Idol. My pretty close to objective assessment, having seen his gifts, is that he's a shoo-in for California.
I re-refer you to the devotion I found and mentioned in yesterday's post. My worst-handled duty as a Christian has been acting as an intercessor for those around me. Let's pray for others, watch with them, lift them up.
**Updates: Zoe was very upset with the whole EEG process, but is through. We'll talk to the doctor about results tomorrow.
Josh sang twice today and they lauded his great voice and look, and then told him he's not what they're after this year.
Saturday, June 28, 2008
Best of Broadway Pictures
Here's a bunch of Best of Broadway pictures, featuring the lovely and talented Jen, her talented and sometimes available brother Josh, "The Big Girls": Teia and Isabel, "The Blondies": Selah and Elise, Little Ethan, and Deirdre's oldest son Keaton.
Musicals featured were "My Fair Lady"; "Into The Woods"; "Spamalot"; "Ms. Saigon"; and "The Sound of Music."
Musicals featured were "My Fair Lady"; "Into The Woods"; "Spamalot"; "Ms. Saigon"; and "The Sound of Music."
Wednesday, March 12, 2008
Selah Turns 9
Selah turned 9 today and Greg and Jen celebrated by taking the family to The Mine Shaft. It's a pretty well known spot with good pizza and a huge game room. Kellen beat his dad at football throwing, tickets were traded for fake Dracula teeth. Temish came along to celebrate.
Wednesday, March 05, 2008
Thursday, February 21, 2008
Hope For Selah
News is reporting a possible cure for type 1 Diabetes, although it appears caught in the stem cell quagmire. Hopefully stem cells created in this way can be used. And hopefully Selah can someday not have to give her self five or six shots a day.
Friday, February 08, 2008
I LOVE MY FAMLY
ILOVE MY FAMILY
THEY ARE THE BEST!
ILOVE MY FAMILY!
MY FAMILY ROKS!
I LOVE MY FAMILY!
My family is so helpful!
I love my family!
My family is like a big ring of fire protecting ME
I love my family!
By selah
Wednesday, January 30, 2008
High School Musical
Phew. Jen finally gets a week of rest after doing three casts of High School Musical at two separate performing arts centers.
Yay! Selah was able to perform and enjoy herself as one of the cheerleaders for East High School in her cast of High School Musical. (you'll see her looking up from signing autographs in the photo album - and that really happened. For the kids who came to this show, being on the cast was about as big a thing as any you could do.
Wow! Izzi absolutely nailed her part as Coach Bolton, a part written for a male which required her to play a strong and overbearing basketball coach.
And what a special time for the girls when Omi and Grandpa Du came to see a performance.
Yay! Selah was able to perform and enjoy herself as one of the cheerleaders for East High School in her cast of High School Musical. (you'll see her looking up from signing autographs in the photo album - and that really happened. For the kids who came to this show, being on the cast was about as big a thing as any you could do.
Wow! Izzi absolutely nailed her part as Coach Bolton, a part written for a male which required her to play a strong and overbearing basketball coach.
And what a special time for the girls when Omi and Grandpa Du came to see a performance.
Tuesday, January 15, 2008
Selah Update
This blog won't be about Selah, but frankly, it's turned the BNS into mush as we all try to reassemble and assimilate the new rules.
What's happening is this: Selah's immune system has turned on her own body and is in the process of killing all the cells inside her that create insulin, the substance that helps to process sugar. Thanks to the attentiveness of Selah's mom, we were able to catch her body in the process of doing this. So Selah's body is still in the process of losing all its insulin-making cells. When they're all gone, they're gone.
In the "old days," diagnosis of diabetes would mean that the child was admitted for a few weeks into the hospital as the child and her family became accustomed to what was next. Today, the child goes home and there are a series of vital meetings with the diabetes clinic as they get you used to what is to come. Shots begin right away. Selahs was put on a rigid diet (rigid specifically about total carbohydrates) (you can find those on every label of food you find) and her blood sugar is monitored, recorded, and reported.
The hospital takes all this info and begins to see a pattern of how the kid will react to certain levels of carbs at certain times of the day. She'll end up with a more flexible eating arrangement capable of allowing for everyday life.
The blood test stick hurts more than the shot, and both are pricks. In a way, the hardest part is the constant nature of the sticks and shots, not the individual ones. In Selah's first ten days of pricks and shots, she's already acquired some bruises from what is and will be her daily routine.
Selah is doing ok. She lost a week of school and getting used to the rigidity of the diet along with catching up with the schoolwork has her a little frustrated and lost. And she keeps getting a lot of attention she isn't sure she wants or knows what to do with.
All Selah's family can tell you is that it's your prayers that has lifted and buoyed us through this time. We are strengthened by the positive realities of this disease -that it is treatable and manageable.
This life isn't about Selah and not about her family. But we are grateful that God loves us like it is. And we're going to keep trying to make it through because He wants us to.
What's happening is this: Selah's immune system has turned on her own body and is in the process of killing all the cells inside her that create insulin, the substance that helps to process sugar. Thanks to the attentiveness of Selah's mom, we were able to catch her body in the process of doing this. So Selah's body is still in the process of losing all its insulin-making cells. When they're all gone, they're gone.
In the "old days," diagnosis of diabetes would mean that the child was admitted for a few weeks into the hospital as the child and her family became accustomed to what was next. Today, the child goes home and there are a series of vital meetings with the diabetes clinic as they get you used to what is to come. Shots begin right away. Selahs was put on a rigid diet (rigid specifically about total carbohydrates) (you can find those on every label of food you find) and her blood sugar is monitored, recorded, and reported.
The hospital takes all this info and begins to see a pattern of how the kid will react to certain levels of carbs at certain times of the day. She'll end up with a more flexible eating arrangement capable of allowing for everyday life.
The blood test stick hurts more than the shot, and both are pricks. In a way, the hardest part is the constant nature of the sticks and shots, not the individual ones. In Selah's first ten days of pricks and shots, she's already acquired some bruises from what is and will be her daily routine.
Selah is doing ok. She lost a week of school and getting used to the rigidity of the diet along with catching up with the schoolwork has her a little frustrated and lost. And she keeps getting a lot of attention she isn't sure she wants or knows what to do with.
All Selah's family can tell you is that it's your prayers that has lifted and buoyed us through this time. We are strengthened by the positive realities of this disease -that it is treatable and manageable.
This life isn't about Selah and not about her family. But we are grateful that God loves us like it is. And we're going to keep trying to make it through because He wants us to.
Wednesday, January 09, 2008
Selah's Diabetes
On January 7th, Selah - Greg's fourth - was diagnosed with type 1 Diabetes, meaning her body does not make insulin. The insulin has to be injected into her throughout the day and night to meet her needs. This is an enormous change for Selah and her family. There's no more casual snacks, no more grazing throughout the day. Ever. What goes in to her body needs to be accounted for so that the proper amount of insulin is placed in her through injections for the rest of her life.
The good news is, her condition was caught at very early stages and damage to her body by extremely high glucose levels was nonexistent. The good news is that Selah is now in the hands of doctors who can guide her dosages to make sure she remains healthy and grows to the beautiful woman she will be.
Pray for Selah and her family as she and they deal with all the changes that will occur.
The good news is, her condition was caught at very early stages and damage to her body by extremely high glucose levels was nonexistent. The good news is that Selah is now in the hands of doctors who can guide her dosages to make sure she remains healthy and grows to the beautiful woman she will be.
Pray for Selah and her family as she and they deal with all the changes that will occur.
Saturday, December 08, 2007
Christmas Tree Tales PICTURES
BNS has received this link to pictures that would help to illuminate the previous Christmas Tree cutting post....
Friday, November 02, 2007
Catch Up 2: TRICK OR TREAT!
Here's how it happens at my house. Trick or treating in West Bend is fantastic. They have a street so busy, it's like a several-block-long party! Lines of kids heading up to houses, and the owners really were excited. Two women got out glasses of wine next to a tub of candy. One house really made use of it's gothic-like architecture to have some fun.
Sometimes you forget that there's days and places like this anymore.
Sometimes you forget that there's days and places like this anymore.
Friday, October 05, 2007
Long Day here. Pumpkin Farm, Powder Puff Football, and a Birthday Party. No Powder Puff pictures, but some of the others...Elise Turns 6 Sunday! Wow.
Tuesday, October 02, 2007
Apple Pickin' 2007
In a bold display of parenting, Greg missed Brett Favre's record-setting performance against the Packer's archrivals, the Vikings, so he could pick some apples with his children. I would compare that to something Bat had done, but Bat knows better than to watch a football game when he can get all the highlights on the news.
Monday, September 24, 2007
JOOYY!
Heidi called me on Saturday. I'm walking through the store and she asked me if I knew a Christmas song...it goes "Jooooyy.....".
Don't ask me to replicate what she sang. It didn't matter. "JOOOOYYY..."
So, if you know the song, let me know. I couldn't get it.
Turns out Heidi is considering trying out for a play, and was trying to locate the song. I'm not sure if it's called "Jooooyy..." or if that's the chorus. Heidi's still on the fence about trying out for the play...I'll keep you posted.
Isabel and Selah tried out and received parts in High School Musical. Izzi is in the Jocks and an extra audition person (where she gets to try out however she wants) (I know that if you don't know anything about High School Musical, that meant nothing) and Selah is a cheerleader!
OOH! And Teia and Isabel's choir was chosen from many entrants to sing with the Milwaukee Symphony in November. They will be performing, among other pieces, "Messiah." And perhaps, "Joooyy."
Don't ask me to replicate what she sang. It didn't matter. "JOOOOYYY..."
So, if you know the song, let me know. I couldn't get it.
Turns out Heidi is considering trying out for a play, and was trying to locate the song. I'm not sure if it's called "Jooooyy..." or if that's the chorus. Heidi's still on the fence about trying out for the play...I'll keep you posted.
Isabel and Selah tried out and received parts in High School Musical. Izzi is in the Jocks and an extra audition person (where she gets to try out however she wants) (I know that if you don't know anything about High School Musical, that meant nothing) and Selah is a cheerleader!
OOH! And Teia and Isabel's choir was chosen from many entrants to sing with the Milwaukee Symphony in November. They will be performing, among other pieces, "Messiah." And perhaps, "Joooyy."
Friday, September 21, 2007
PRAYERS ANSWERED: SELAH'S HEALTH
Thank you all for your prayers for Selah and our family through the past days and weeks. For those of you who missed the craziness, Selah had a seizure on June 4 which resulted in a 911 call and all kinds of tests.
Later in the summer, Selah's doctor indicated that her EEG showed she had a tendency to seizures. This further perplexed and worried her dad and her family.
On Monday, September 17, I met with Selah's doctor. He kind of looked like Ben Stein and Mr. Rogers crossed. The doctor began our session with these words: "I have nothing but good news for you."
He went on to explain that Selah had what he called "Benign Focal Seizures (or Epilepsy) of Childhood". He said it didn't qualify as Epilepsy because it was just one seizure, and that she may never have a seizure again. Selah should grow out of her condition by pre-adolescence.
As I left, he gave me some information referring to this. So I guess it's the same thing? All I know is I'm grateful and thankful that God answered my - our - prayers in this way. He'd still be merciful God with other answers. But He and I saw eye to eye on this one. Imagine that.
Subscribe to:
Posts (Atom)
